Thursday, February 22, 2007

Parents had to fight for baby's short life

Remebering Jordan
The amniocentesis confirmed the diagnosis that our baby had Trisomy 18. The doctor went over the numbers with us: 80% chance of still birth, 90% chance he would die before first birthday.

We were steered in the direction of terminating the pregnancy. We explained that this was not an option. We were told to call our OB in the morning.

We cried all night long.

The next morning, we called our OB. She told us that our little Jordan was a nonviable fetus and there was no reason to continue pregnancy especially considering the hyperemesis that Jen was experiencing.

We were outraged. Our doctor had called the pregnancy 'pointless'. She refused to see us in the office until mid January and indicated that follow up appointments were not necessary. She advised us to terminate the pregnancy.

We were devastated and felt alone. We had been abandoned by our doctor.

To add insult to injury, our OB refused to authorize Zofran and told Jen she was no longer eligible for disability.


Fortunately, they were able to find a new doctor who helped them to hold on until Jordan suffered a crisis requiring immediately delivery if they were to ever see him alive. They had 32 precious hours with their baby, to surround him with family and love. Just because his life was short doesn't mean it wasn't worth living.

As Sojourner Truth said, "If my cup won't hold but a pint, and yourn holds a quart, wouldn't ye be mean not to let me have my little half­measure full?"

HT: Ashli

4 comments:

Tlaloc said...

"We were devastated and felt alone. We had been abandoned by our doctor."

No they got their doctor's advice and chose to ignore it. They weren't abandoned they just refused to take the practical approach.

That's fine, they have the right to to be dominated by their emotions if they like, but that doesn't mean medical professionals have to validate and agree with their choice.

Rachael said...

Whatever happened to the "right to choose?" There is no only one right choice in the difficult case of a poor prenatal diagnosis. In this case, the parents choose to carry their son to term and ethically the doctor should of referred them to a specialist or another doctor if he felt he was unable to provide further care.

Tlaloc said...

"Whatever happened to the "right to choose?" "

What about it? Did anyone force an abortion on them? No. Just as you can choose to drink a bottle of ipecac syrup if you like but your right to choose doesn;t mean your doctor has to say it's a good idea or anyone else has to support your idiocy.



"There is no only one right choice in the difficult case of a poor prenatal diagnosis."

There may be a best medical choice. That's the recommendation the doctor should give.



"In this case, the parents choose to carry their son to term and ethically the doctor should of referred them to a specialist or another doctor if he felt he was unable to provide further care."

I have no problem with that, but obviously they did get medical help since they did prolong the ordeal.

ashli said...

tlaloc,

it's a shame about you.

next time a woman chooses to take that magic little pill that prevents implantation and/or kills the living human being gestating inside of her... and her physician refuses to prescribe it because that physician disagrees with abortion... make sure you "have no problem with that" so as not to look like a flaming liberal who is not afraid to contradict him/herself to sell his/her poison.